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September 2025: for patients and doctors

Welcome on the Amyloidosis Alliance website

Everyone can act in their own way in different forms, because the more numerous we are, the more important will be the recognition of the disease.

A complex disease

Amyloidosis is a rare disease linked to the abnormal folding of proteins in the body.

ABOUT US

The Amyloidosis Alliance's missions

Communication and mutual support between patients organizations

With the Amyloidosis Alliance, whether you are an association, a patient organisation somewhere in the world, by speaking out together we help each other and advance the fight against the disease worldwide.

Amyloidosis Alliance: advocacy at an international level 

Through the Alliance, we share our knowledge about the disease. Together, let's make sure that awareness, diagnosis, treatment and care, but also research, advance on an international level.

One of our most important mission is also to support and encourage other countries in initiating patient organizations.

The amyloidosis alliance supports the fight against amyloidosis worldwide and accompanies patient organisations in different countries.
Join us and become a member of the Amyloidosis Alliance.

NEWS

Our latest news
5th-international-amyloidosis-meeting
International amyloidosis ATTR meeting for patients and doctors
The ATTR meeting 2025 is the premier global event dedicated to the latest advancements in transthyretin amyloidosis (ATTR) research, treatment, and patient care. Scheduled forRead More »
Amylife: Amyloidosis survey to Understand Patient Lives
On November 29, 2024, the Amyloidosis Alliance officially launched Amylife: amyloidosis survey, a groundbreaking global survey designed to explore the daily challenges and needs ofRead More »
amyloidosis-worldwide-event
Join Us for a Global Live Event on World Amyloidosis Day – October 26, 2024!
🌍🌟 On October 26, 2024, we invite you to take part in a special World Amyloidosis Day event—an international live multiplex broadcast featuring leading amyloidosisRead More »

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