Amylife: Amyloidosis survey to Understand Patient Lives

Amylife: Amyloidosis survey to Understand Patient Lives

On November 29, 2024, the Amyloidosis Alliance officially launched Amylife: amyloidosis survey, a groundbreaking global survey designed to explore the daily challenges and needs of patients living with amyloidosis and…

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Join Us for a Global Live Event on World Amyloidosis Day – October 26, 2024!

Join Us for a Global Live Event on World Amyloidosis Day – October 26, 2024!

🌍🌟 On October 26, 2024, we invite you to take part in a special World Amyloidosis Day event—an international live multiplex broadcast featuring leading amyloidosis organizations and experts from different…

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World Amyloidosis Day:  October 26, 2024

World Amyloidosis Day: October 26, 2024

On October 26, 2024, the global amyloidosis community will come together for the 4th World Amyloidosis Day, a pivotal event aimed at raising awareness, educating the public, and fostering support for those affected by amyloidosis. Organized by the Amyloidosis Alliance, this year’s event will see a series of activities and campaigns across multiple countries…

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Amyloidosis AL meeting: a comprehensive review of the event

Amyloidosis AL meeting: a comprehensive review of the event

The Amyloidosis AL meeting, held last week, was a landmark event that brought together a dynamic mix of experts, researchers, and patients to discuss the latest advancements in amyloidosis AL.

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The First Amyloidosis AL Congress in Belgium

The First Amyloidosis AL Congress in Belgium

The Amyloidosis Alliance is thrilled to announce the inaugural Amyloidosis AL Congress, set to take place on July 5th and 6th in Belgium.
The Amyloidosis AL Congress is designed to foster an environment of learning and collaboration. It will be available online and on site.

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The XIX International Symposium on Amyloidosis: A Landmark Event in Rochester, MN

The XIX International Symposium on Amyloidosis: A Landmark Event in Rochester, MN

From Sunday, May 26 to Thursday, May 30, 2024, the city of Rochester, MN hosted the XIX International Symposium on Amyloidosis. Organized in collaboration with the International Society of Amyloidosis (ISA) Board and esteemed members of the Mayo Clinic, the symposium delivered a dynamic and engaging scientific program.

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Raising awareness for Amyloidosis: a collaborative event in Switzerland

Raising awareness for Amyloidosis: a collaborative event in Switzerland

On May 17th, 2024, the Centre Hospitalier Universitaire Vaudois (CHUV) and the Hôpitaux Universitaires de Genève (HUG) hosted a pivotal afternoon dedicated to amyloidosis. This event was more than just…

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Understanding Amyloidosis Symptoms: Why Early Diagnosis is Crucial

Understanding Amyloidosis Symptoms: Why Early Diagnosis is Crucial

Did you know that the symptoms of amyloidosis can often mimic those of other conditions, leading to misdiagnosis and delayed treatment? Amyloidosis is a rare disease characterized by the buildup…

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A new study published about Hereditary Transthyretin Amyloid Polyneuropathy

A new study published about Hereditary Transthyretin Amyloid Polyneuropathy

A new study published about Hereditary Transthyretin Amyloid Polyneuropathy sheds light on the effectiveness of treatments for FAP

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The Vital Role of Healthcare Professionals in Amyloidosis Management: Amyloidosis Alliance Leading the Way

The Vital Role of Healthcare Professionals in Amyloidosis Management: Amyloidosis Alliance Leading the Way

In the intricate landscape of healthcare, certain conditions demand specialized attention and collaborative efforts for effective management. Amyloidosis, a rare yet complex disorder characterized by the abnormal buildup of amyloid…

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