Dear members of our committed community, We need your testimonies for World Amyloidosis Day on 26 October! We are launching a major awareness campaign to highlight the impact of all…
Read MoreUnraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication. there are still widespread misunderstandings surrounding this disorder, which can lead to communication problems within families dealing with its impact.
Read MoreAmyloidosis is a rare disease that affects a small number of people worldwide. It is a complex condition that can cause a range of symptoms, from fatigue and weakness to…
Read MoreGreat news to share with the community.
This press release announces that the BioBridge laboratory will now be able to submit an approval dossier to the health authorities.
Read MoreHereditary amyloidosis is a rare genetic disease. This disease is characterised by the unusual deposition of protein clusters in tissues, between cells, and often in the walls of small vessels….
Read MoreUnderstanding amyloidosis: symptoms, diagnosis and outlook Amyloidosis is a rare disease affecting a limited number of people worldwide. Although little known, it can have a significant impact on patients’ quality…
Read MoreFor almost 150 years after its discovery, amyloidosis was considered incurable. Historically, the complexity of the disease delayed research. Why invest time and money in research on such a complex…
Read MoreAmyloidosis is a rare disease that occurs when abnormal proteins build up in tissues and organs throughout the body. This build-up can lead to a variety of health problems and…
Read MoreWe have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it is so little known…
Read MoreThe World Heart Federation (WHF) convened a special forum May 17-18, 2023 in Geneva, Switzerland, entitled “SHINING A LIGHT ON RARE CARDIOVASCULAR DISEASES” in advance of the 2023 World Heart…
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