Call for testimonies on Amyloidosis

Call for testimonies on Amyloidosis

Dear members of our committed community, We need your testimonies for World Amyloidosis Day on 26 October! We are launching a major awareness campaign to highlight the impact of all…

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Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication

Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication

Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication. there are still widespread misunderstandings surrounding this disorder, which can lead to communication problems within families dealing with its impact.

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Can Amyloidosis Be Cured?

Can Amyloidosis Be Cured?

Amyloidosis is a rare disease that affects a small number of people worldwide. It is a complex condition that can cause a range of symptoms, from fatigue and weakness to…

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Important press release

Important press release

Great news to share with the community. 

This press release announces that the BioBridge laboratory will now be able to submit an approval dossier to the health authorities.

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New hope of a cure for amyloidosis sufferers

New hope of a cure for amyloidosis sufferers

Hereditary amyloidosis is a rare genetic disease. This disease is characterised by the unusual deposition of protein clusters in tissues, between cells, and often in the walls of small vessels….

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Understanding amyloidosis: symptoms and diagnosis

Understanding amyloidosis: symptoms and diagnosis

Understanding amyloidosis: symptoms, diagnosis and outlook Amyloidosis is a rare disease affecting a limited number of people worldwide. Although little known, it can have a significant impact on patients’ quality…

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Amyloidosis Progress

Amyloidosis Progress

For almost 150 years after its discovery, amyloidosis was considered incurable. Historically, the complexity of the disease delayed research. Why invest time and money in research on such a complex…

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Amyloidosis and physical activity

Amyloidosis and physical activity

Amyloidosis is a rare disease that occurs when abnormal proteins build up in tissues and organs throughout the body. This build-up can lead to a variety of health problems and…

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Cardiac amyloidosis is under-diagnosed

Cardiac amyloidosis is under-diagnosed

We have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it is so little known…

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The WHF forum in Switzerland

The WHF forum in Switzerland

The World Heart Federation (WHF) convened a special forum May 17-18, 2023 in Geneva, Switzerland, entitled “SHINING A LIGHT ON RARE CARDIOVASCULAR DISEASES” in advance of the 2023 World Heart…

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