I was diagnosed with Amyloidosis in 2018, age 52, following several years of visits for symptoms that couldn’t be explained. I knew something was wrong but routine check ups showed…
Read More
05/04/2023
28/03/2023
When the diagnosis is made, the first reflex is often to go on the internet to find out more about Amyloidosis. Test your knowledge of amyloidosis and learn more about…
Read More
19/03/2023
Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients According to a Spanish study, people with hereditary transthyretin amyloidosis (hATTR) may develop eye problems over time. Indeed, researchers…
Read More
08/03/2023
This program is called “Fråga Doktorn” (Ask the Doctor) and is broadcast in Sweden.Each week there is always a special topic that is covered and this time it was about…
Read More
28/02/2023
Today is RARE DISEASE DAY!!! Amyloidosis is one of them and we are doing everything we can to support the event and this fight against rare diseases! Today, rare diseases…
Read More
15/02/2023
Caring for a person with hereditary Transthyretin amyloidosis (hATTR), has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reported. Read this article from FAP new…
Read More
02/02/2023
15 February 2023
On-site: Puerta de Hierro University Hospital. Majadahonda, Madrid
Also online from the official website event.
26/01/2023
New FAP-causing Mutation Found in Elderly Man in Germany
“An elderly man in Germany was found to carry one copy of a new mutation in the TTR gene that caused both neurological and heart symptoms of familial amyloid polyneuropathy…
17/01/2023
A retrospective of 2022: a year around Amyloidosis in video. Find in this video the actions and projects of the Alliance realised in 2022.The Amyloidosis Alliance and its members wishes…
Read More
21/12/2022
We wish you a wonderful holiday season. May they be filled with smiles and happy moments with your family.We will meet again in 2023 for even more actions around Amyloidosis.
Read More