The World Amyloidosis Day2022
In order to raise awareness of the fact that amyloidosis patients are diagnosed after an average of 4 years and to bring together all those concerned by the disease, the Amyloidosis Alliance and several other patient organisations have decided to create World Amyloidosis Day in 2021, which brings together no less than 18 countries on 4 different continents.
Amyloidosis is a rare, complex and multifaceted disease.
Amyloidosis is still not well known by the general public and health professionals, which makes it even more difficult to detect. However, the longer it takes, the greater the risks. If amyloidosis is not treated quickly, life expectancy is between 3 and 5 years for the wildest forms.
The aim of this year’s day, which will take place on 26 October 2022, is therefore to bring together as many people as possible against amyloidosis and to connect the amyloidosis community with a wide audience.
It is now essential to implement such measures and to show solidarity in order to raise awareness of the disease and ensure better and faster access to diagnosis and care. It is by extending knowledge of amyloidosis to all practitioners that we will improve suspicion and reduce erroneous diagnosis.
It is together that we can aspire to make progress.
Therefore, it is important to gather on a single day to bring together patients, carers and all other stakeholders. This is why World Amyloidosis Day is for everyone: health authorities and professionals, social workers, pharmaceutical companies, researchers, volunteers, associations… each of you can strengthen our fight and help us move forward.
To support patients and their families, let’s be the link that keeps them alive.
At a time when digital technology is more important than ever, we have also set up a digital awareness campaign called “Be the Link” on social networks. By sharing the orange Be the Link link, you can also help raise digital awareness of the disease.